For any of you reading that might have a child taking a proton pump inhibitor, or are taking one yourself, it's a good idea if you've taken it a while, to have your B-12 checked. Never mind that the doctor may say it isn't necessary :) Initially, I had her B-12 checked because she had a few gray hairs and alopecia, and a google search revealed sometimes low B-12 is the cause of gray hair in children. AFTER we discovered her B-12 was at the very lowest within the very large normal range, another google search showed that with the great numbers of people now taking this class of reflux drugs they are finding B-12 deficiencies. Jessie now takes a B-12 tablet and as long as we take it semi-regularly her B-12 comes up to the middle of the normal range. If we stop it it goes back down.
I have found it to be SO important to have a pediatrician that really listens to my concerns, and will go along a bit with me. Jessie's pediatrician checked her B-12 for me after I told him I read that gray hair is sometimes associated with low B-12. He agreed to check it to put me at ease, but assured me that it is rare to find a B-12 deficient child that eats meat. We found one!! Jessie is a meat lover!
I share the poop story with you not cause I want to gross you out but because I know reflux is pretty common amongst younguns with Down syndrome. If you have dealt with reflux and have any suggestions that might be helpful please leave me a comment!